Patient Resources

As an advocate for the health and well-being of all children, Norton Children’s Heart Institute provides access to exceptional resources that provide both the professional expertise and the compassionate care so needed by recovering children and their families.

FDN-8308_Brave Heart Supported by logo

Brave Hearts

Brave Hearts is an exceptional support group comprised of families united by their children’s fight to overcome complex heart issues. Brought together by their desire to provide a strong support system to help their children, the Brave Hearts team also reaches out to other families whose children are struggling to overcome congenital heart defects or acquired heart conditions. Brave Hearts has the unique ability to help families stand strong and support one another through what can be a difficult journey.

Through support, family advocacy and fundraising efforts, Brave Hearts plays an active role in supporting Norton Children’s Heart Center. Discover more about Brave Hearts on their Facebook page.

Child Life Therapists

Challenging health care situations for children and their families can be less daunting with access to professional expertise. A Child Life therapist is a specially trained professional who works closely with children and their families to help them better understand and manage difficult medical situations, serving as emotional support to reduce stress and anxiety, while helping families to develop coping strategies. With a background in child development, psychology and counseling, child life therapists help to explain medical terminology to kids and their families to prepare them for procedures. As part of their expertise, Child Life therapists can also enhance communications among families, children and the medical staff to facilitate a better and more comfortable experience for all.

To learn more about how Child Life services can benefit you, your child and your family, ask your care team to connect you during your next visit with us.

Hearts & Hands Care Team

Hearts & Hands Care Team

When children and families face complex or life threatening medical conditions, special expertise and care is often needed in treating pain, symptoms and stress. This is over and above any other treatments that the child may be receiving.

The Hearts and Hands Care Team includes a pediatrician, clinical nurse managers, a nurse clinician, social service workers and pastoral care specialists who work in collaboration with other specialists as needed. The other specialists may include Child Life therapists, expressive art therapists, psychologists, occupational therapists, physical therapists, nutritionists and care providers.

Pastoral Care

Pastoral Care, provided by Norton Children’s Chaplains is also available to offer comfort and support to families, caregivers and children during this time. Please feel welcomed to ask whenever you think help may be needed.

Girl with rare form of long QT syndrome thriving after specialized heart care

Parents Lena and Sixtus Iwu say that looking at their 5-month-old daughter Eleanor, you wouldn’t know what she’s been through with a congenital heart condition. The growing, active child born in December has a rare […]

Read Full Story

Twin gets pacemaker for congenital heart block

The Jackson family discovered the first surprise of their second pregnancy at their scheduled 14-week appointment: They were having twin boys. A few days before Christmas 2017, the family went for the 20-week anatomy scan, […]

Read Full Story

A routine prenatal ultrasound turns scary, but offers time to prepare for lifesaving heart surgery

For Lauren Fitzmaurice of Owensboro, Kentucky, after 30 weeks of pregnancy, her due date was starting to seem like it was within reach. Pregnant with her second son, Miles, she was diagnosed with gestational diabetes, […]

Read Full Story

Helping kids avoid and overcome infections after transplants

Victoria A. Statler, M.D., works hard to educate children undergoing transplants on ways to avoid potentially dangerous infections. She also treats them when they do get sick. Children receiving transplanted organs or bone marrow take […]

Read Full Story

Rare congenital heart disease treated through combination of surgical techniques

Alyssa Claycomb considers her first two children “healthy as horses.” So during her pregnancy with her youngest child, Cayden Horton, the thought of congenital heart disease never entered her mind, let alone a very rare […]

Read Full Story
Related Stories

Girl with rare form of long QT syndrome thriving after specialized heart care

Parents Lena and Sixtus Iwu say that looking at their 5-month-old daughter Eleanor, you wouldn’t know what she’s been through with a congenital heart condition. The growing, active child born in December has a rare […]

Read Full Story

Twin gets pacemaker for congenital heart block

The Jackson family discovered the first surprise of their second pregnancy at their scheduled 14-week appointment: They were having twin boys. A few days before Christmas 2017, the family went for the 20-week anatomy scan, […]

Read Full Story

A routine prenatal ultrasound turns scary, but offers time to prepare for lifesaving heart surgery

For Lauren Fitzmaurice of Owensboro, Kentucky, after 30 weeks of pregnancy, her due date was starting to seem like it was within reach. Pregnant with her second son, Miles, she was diagnosed with gestational diabetes, […]

Read Full Story

Helping kids avoid and overcome infections after transplants

Victoria A. Statler, M.D., works hard to educate children undergoing transplants on ways to avoid potentially dangerous infections. She also treats them when they do get sick. Children receiving transplanted organs or bone marrow take […]

Read Full Story

Rare congenital heart disease treated through combination of surgical techniques

Alyssa Claycomb considers her first two children “healthy as horses.” So during her pregnancy with her youngest child, Cayden Horton, the thought of congenital heart disease never entered her mind, let alone a very rare […]

Read Full Story

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