Children’s Network Cancer Registry

The Network Cancer Registry manages the registry for Norton Children’s Cancer Institute, affiliated with the UofL School of Medicine. In 2018, 110 new cancer cases were entered into the Norton Children’s Hospital database. Since 1995, the Norton Children’s Cancer Institute Registry has collected data on 1,728 cancer cases.

In addition to entering information on new cancer diagnoses, the Norton Children’s Cancer Institute Network Cancer Registry also follows all pediatric cancer and benign/borderline brain and central nervous system tumor patients until they reach age 27. Currently, the registry follows 1,199 pediatric patients, maintaining a five-year follow-up rate of 90% and a reference date (1995) follow-up rate of 60%.

Cancer – 7725

Contact Us

Norton Children’s offers advanced pediatric cancer care

(502) 629-7725

Nurse navigator found her ‘niche’ in childhood cancer

When Frances Price, R.N., was a teenager, she felt a calling to nursing. She had watched her grandfather struggle with health complications, including heart attacks and strokes. Today, as a patient navigator with Norton Children’s […]

Read Full Story

Pediatrician, brain surgeon and oncologist team up to help boy recover

In 2016, not long after his fourth birthday, Jameson Milby started having headaches, nausea and vomiting. “I’m one of those moms who calls the doctor for a scrape on the knee, so I made an […]

Read Full Story

Faced with childhood cancer, family chooses joy over sadness

“Your child has cancer.” Those are words no parent ever wants to hear. It’s heartbreaking news that takes you on an emotional roller coaster, filled with difficult decisions. Emily and Jason Fox’s son Boone was […]

Read Full Story

What is sickle cell disease?

Sickle cell disease (SCD) is one of the most common genetic disorders in the world. Each year, 1,000 babies in the U.S. and 500,000 children worldwide are born with the condition, according to the Sickle […]

Read Full Story

Honor Childhood Cancer Awareness Month with Norton Children’s Cancer Institute

2020 has been a challenging year. Unfortunately, childhood cancer doesn’t stop during a pandemic. Many of the “new normal” actions that everyone should use to reduce the risk from COVID-19 — face masks, social distancing […]

Read Full Story
Related Stories

Nurse navigator found her ‘niche’ in childhood cancer

When Frances Price, R.N., was a teenager, she felt a calling to nursing. She had watched her grandfather struggle with health complications, including heart attacks and strokes. Today, as a patient navigator with Norton Children’s […]

Read Full Story

Pediatrician, brain surgeon and oncologist team up to help boy recover

In 2016, not long after his fourth birthday, Jameson Milby started having headaches, nausea and vomiting. “I’m one of those moms who calls the doctor for a scrape on the knee, so I made an […]

Read Full Story

Faced with childhood cancer, family chooses joy over sadness

“Your child has cancer.” Those are words no parent ever wants to hear. It’s heartbreaking news that takes you on an emotional roller coaster, filled with difficult decisions. Emily and Jason Fox’s son Boone was […]

Read Full Story

What is sickle cell disease?

Sickle cell disease (SCD) is one of the most common genetic disorders in the world. Each year, 1,000 babies in the U.S. and 500,000 children worldwide are born with the condition, according to the Sickle […]

Read Full Story

Honor Childhood Cancer Awareness Month with Norton Children’s Cancer Institute

2020 has been a challenging year. Unfortunately, childhood cancer doesn’t stop during a pandemic. Many of the “new normal” actions that everyone should use to reduce the risk from COVID-19 — face masks, social distancing […]

Read Full Story

Search our entire site.