The Network Cancer Registry manages the Norton Children’s Cancer Institute Registry. In 2017, 94 new cancer cases were entered into the Norton Children’s Hospital database. Since 1995, the Norton Children’s Cancer Institute Registry has collected data on 1,728 cancer cases. Beginning in 2004, the registry began collecting data on benign/borderline brain and central nervous system tumors, as required by law.

In addition to entering information on new cancer diagnoses, the Norton Children’s Cancer Institute Registry also follows all pediatric cancer and benign/borderline brain and central nervous system tumor patients until they reach age 27. Currently, the registry follows 1,199 pediatric patients, maintaining a five-year follow-up rate of 90 percent and a reference date (1995) follow-up rate of 60 percent.