Family Care Conference

Families are an important part of a child’s care team. Communication between family members and the care team treating your child is key for your child’s ongoing care. Because of the pace of life in the hospital, it may be difficult to schedule time with all care team members in one place.

A family care conference is a specific, scheduled meeting with all care team members in the same place. A family care conference includes the patient (your child), parent(s) or guardian(s), and the entire care team.

Reasons for a Family Care Conference

A family care conference may be called if:

  • A child is in the hospital for more than one week (seven days)
  • A parent or guardian requests one
  • A health care provider requests one
  • A family has complex needs that may affect the child’s care
  • A major change in the diagnosis or care plan develops
  • The care team doesn’t agree on follow-up plans for outpatient care
  • There are complex follow-up plans following a child leaving the hospital
  • You have serious concerns about the child’s care that you feel have not been discussed
  • A child is re-admitted to the hospital soon after going home

Family Care Conference Team Members

The family care conference team may include the following health providers:

  • Physicians
  • Nurse practitioners
  • Nurses
  • Patient navigator
  • Social worker
  • Your clergyperson/faith leader or hospital chaplain (at your request)

Family Care Conference Goals

Whether the conference is called by a provider or a family member, the goals are to:

  • Answer all questions and concerns
  • Make sure the family and entire care team has the same information to make informed decisions
  • Identify decisions to be made to create a care plan
  • Create a care plan together

What to Expect During a Family Care Conference

  • Each care team member introduces themselves. A facilitator will lead the discussion, as well as review and clarify any questions, goals or outcomes.
  • The attending physician will talk with you about the current situation, what the team believes happened and what they expect moving forward. Other care team members will report out as necessary.
  • The care team will discuss possible treatments and/or procedures. This discussion will include what the care team expects to happen as well as potential risks. The care team will list all potential decisions that need to be made regarding care.
  • The facilitator will make sure all questions are answered or have a plan in place to get the questions answered.
  • Parents/guardians will have the chance to talk about what to expect as well as how to plan for the future.
  • Everyone will have the chance to speak, including the child, if he or she is able to.
  • If the child is unable to speak, the care team and family will discuss what the child would want in this scenario.
  • The meeting will be recorded by notes. The notes become a part of your child’s medical record, and you will get a copy.

How to Request a Family Care Conference

Ask any member of your child’s care team that you would like a family care conference. The care team member will talk to the attending physician to schedule the conference. A time will be chosen that is most convenient for all parties to be present. A child’s health care team also will assess and call a family care conference if needed. However, you can ask for a care conference any time you feel the entire team should meet to discuss your child’s care.

Family Care Conference

Request a Family Care Conference from Any Member of Your Child’s Care Team

Muscular dystrophy tests include genetic, muscle and nerve examinations

Tests for muscular dystrophy generally look for genes associated with inherited muscle diseases and include measures of muscle strength and neurological tests along with other examinations to rule out other causes of symptoms. Before any […]

Read Full Story

Woman born with Ebstein anomaly thriving over 30 years later

Christa Taylor was born with Ebstein anomaly, pulmonary atresia and pulmonary stenosis, all forms of congenital heart disease (CHD). She manages her adult congenital heart disease with care from Norton Children’s Heart Institute, affiliated with […]

Read Full Story

Kids may have subtle differences in COVID-19 symptoms

COVID-19 symptoms in kids are largely the same as adults, but there can be subtle differences. Common COVID-19 symptoms include cough, fever or both, according to the Centers for Disease Control and Prevention (CDC). There […]

Read Full Story

How do I limit screen time for kids?

Limiting screen time after 18 months of reliance on them can be hard for parents. Many families have felt they had no choice when it came to loosening rules on screen time, due to the […]

Read Full Story

Haploidentical blood marrow transplant patient reaches milestones, celebrates turning 18

On Valentine’s Day, 2020, Angel Florian received a 6-foot-tall plush rose from her boyfriend. It was a substitute for the real flowers he wanted to give her but couldn’t because her weakened immune system made […]

Read Full Story
Related Stories

Muscular dystrophy tests include genetic, muscle and nerve examinations

Tests for muscular dystrophy generally look for genes associated with inherited muscle diseases and include measures of muscle strength and neurological tests along with other examinations to rule out other causes of symptoms. Before any […]

Read Full Story

Woman born with Ebstein anomaly thriving over 30 years later

Christa Taylor was born with Ebstein anomaly, pulmonary atresia and pulmonary stenosis, all forms of congenital heart disease (CHD). She manages her adult congenital heart disease with care from Norton Children’s Heart Institute, affiliated with […]

Read Full Story

Kids may have subtle differences in COVID-19 symptoms

COVID-19 symptoms in kids are largely the same as adults, but there can be subtle differences. Common COVID-19 symptoms include cough, fever or both, according to the Centers for Disease Control and Prevention (CDC). There […]

Read Full Story

How do I limit screen time for kids?

Limiting screen time after 18 months of reliance on them can be hard for parents. Many families have felt they had no choice when it came to loosening rules on screen time, due to the […]

Read Full Story

Haploidentical blood marrow transplant patient reaches milestones, celebrates turning 18

On Valentine’s Day, 2020, Angel Florian received a 6-foot-tall plush rose from her boyfriend. It was a substitute for the real flowers he wanted to give her but couldn’t because her weakened immune system made […]

Read Full Story

Search our entire site.