Cystic Fibrosis Program

Cystic fibrosis (CF) is a lifelong condition that requires specialized care to manage its symptoms. The Norton Children’s Cystic Fibrosis Program offers high-quality care for children and young adults with CF.

Our CF multidisciplinary team is committed to providing high-quality, effective, patient-centered care in partnership with the patient, family and community. Our CF program actively participates in clinical research with the overall goal of providing evidence-based therapies and an eventual cure for the disease.

What Is Cystic Fibrosis?

CF is a progressive genetic disorder that affects the lungs, pancreas and other organs. To have CF, a child must inherit two abnormal CF genes — one from each parent. In patients with CF, the amount of water and salt in many areas of the body is unbalanced, which results in cellular surfaces being unable to absorb water. This causes thick, sticky mucus to clog tubes, ducts and passageways in many organs.

According to the Cystic Fibrosis Foundation Patient Registry, CF affects about 30,000 children and adults in the United States. Approximately 1,000 cases are diagnosed each year.

Cystic Fibrosis Diagnosis

About the Norton Children’s Cystic Fibrosis Program

CF Foundation Accreditation

The Norton Children’s Cystic Fibrosis Program is accredited by the Cystic Fibrosis Foundation as a Cystic Fibrosis Care Center, meaning it offers “the best care, treatments and support for those with CF.” Norton Children’s has the only accredited pediatric CF program in Louisville and Southern Indiana. Quality care means we can help our young patients with CF strive to achieve excellent lung function. Our location offers easy access to families from Kentucky, Indiana and Ohio.

What to Expect From Our Program

 

Care Team

Our interdisciplinary team approach to managing this complex disease means your child will benefit from the expertise of pediatric pulmonologists, nurses, respiratory therapists, a dietitian, social worker and pharmacist. Access to other pediatric specialists, such as gastroenterology, endocrinology and otolaryngology, are readily available at the Novak Center for Children’s Health for consultations as needed.

Each patient is offered individualized care with evidence-based therapies guided by the child’s genotype. This team works together to provide a customized, family-centered care plan. As CF affects the whole family, we also help coordinate home health services and other community resources. The multidisciplinary team also provides guidance for children and teens as they transition into adulthood.

Meet Our Care Team

Cystic Fibrosis Research

The Norton Children’s Cystic Fibrosis Program is a member of the Cystic Fibrosis Foundation Therapeutics Development Network, a clinical trials network for CF research. Your child may be able to benefit from access to new and innovative treatments being tested through our extensive clinical research program.

Pulmonology – 4940

Norton Children’s Pulmonology

Call for More Information

(502) 588-4940

Plenty of allergens and severe weather can mean thunderstorm asthma

Warm temperatures in Louisville and Southern Indiana bring severe weather and a jump in allergens like pollen. For some, that may mean a risk of “thunderstorm asthma.” Thunderstorm asthma occurs when strong winds and rain […]

Read Full Story

Child with SMARD1 thriving with 5-in-1 home ventilator

The day before Thanksgiving 2018, the Howell family was traveling from Louisville to Frankfort to visit relatives. During the drive, 4-week-old Brooks started crying. It was the beginning of the family’s journey with the rare […]

Read Full Story

Teen receives newer cystic fibrosis treatment that improves lung function

Erica Kelley was living in Arizona in 2007 when her son, Samuel, was born. Sam received his newborn screening before leaving the hospital, as is required in most states in the U.S. The screening indicated […]

Read Full Story

Helping kids with pulmonary conditions accomplish their goals

Scott G. Bickel, M.D., was drawn to pediatric pulmonology by the bonds he would be able to develop with children and their families. He sums up his work as helping kids with pulmonary conditions lead […]

Read Full Story

What an asthma attack looks like in a child

An asthma attack in a child can be scary. Wheezing — a whistling sound especially when exhaling — is the classic sign of an attack or flare-up. Other common signs are coughing, chest tightness and […]

Read Full Story
Related Stories

Plenty of allergens and severe weather can mean thunderstorm asthma

Warm temperatures in Louisville and Southern Indiana bring severe weather and a jump in allergens like pollen. For some, that may mean a risk of “thunderstorm asthma.” Thunderstorm asthma occurs when strong winds and rain […]

Read Full Story

Child with SMARD1 thriving with 5-in-1 home ventilator

The day before Thanksgiving 2018, the Howell family was traveling from Louisville to Frankfort to visit relatives. During the drive, 4-week-old Brooks started crying. It was the beginning of the family’s journey with the rare […]

Read Full Story

Teen receives newer cystic fibrosis treatment that improves lung function

Erica Kelley was living in Arizona in 2007 when her son, Samuel, was born. Sam received his newborn screening before leaving the hospital, as is required in most states in the U.S. The screening indicated […]

Read Full Story

Helping kids with pulmonary conditions accomplish their goals

Scott G. Bickel, M.D., was drawn to pediatric pulmonology by the bonds he would be able to develop with children and their families. He sums up his work as helping kids with pulmonary conditions lead […]

Read Full Story

What an asthma attack looks like in a child

An asthma attack in a child can be scary. Wheezing — a whistling sound especially when exhaling — is the classic sign of an attack or flare-up. Other common signs are coughing, chest tightness and […]

Read Full Story

Search our entire site.