Craniofacial Program at Norton Children’s

Unless you know a friend or loved one who experienced a craniofacial disorder, such as cleft palate, it’s likely you may never have heard of the many conditions that affect the bones and soft tissues of the head and face. No matter how complex or rare a craniofacial disorder, it’s likely the craniofacial program at Norton Children’s Hospital has cared for a child from Louisville, Southern Indiana or across the globe with that condition.

First Program in the Midwest to Treat Craniofacial Disorders

In the 1920s, Norton Children’s Hospital became the first in the Midwest to develop a “craniofacial anomalies team” to treat children with facial deformities. The team’s expertise and quality care has continued to grow.

Today, the Norton Children’s Craniofacial Program, in conjunction with the University of Louisville School of Medicine, helps hundreds of kids with craniofacial disorders every year.

Mark E. Chariker, M.D., chief of plastic surgery at Norton Children’s Hospital, along with Scott J. Rapp, M.D., and a team of specialists with Norton Children’s Neuroscience Institute, affiliated with the UofL School of Medicine, are skilled in advanced techniques in craniofacial surgery.

Our craniofacial specialists work closely with specialists in dentistry; ear, nose and throat; oral and maxillofacial surgery; and pediatric rehabilitation to provide comprehensive care.

We understand the importance of minimizing soft tissue disruption during surgery, including:

Craniofacial Disorders We Treat

  • Acute and chronic conditions (resulting from a disease, injury or other trauma) as the result of facial fractures
  • Auriculocondylar syndrome
  • Branchiootorenal syndrome
  • Blepharophimosis
  • Cleft palate and related conditions, including:
    • 2-related disorders/velocardiofacial syndrome
    • Pierre Robin sequence
    • Stickler syndrome
    • Van der Woude syndrome
  • CHARGE syndrome
  • Craniofacial syndromes, including:
    • Craniosynostosis (isolated, multisuture involvement)
    • Apert syndrome
    • Carpenter syndrome
    • Crouzon syndrome
    • Muenke syndrome
    • Plagiocephaly
    • Pfeiffer syndrome
    • Saethre-Chotzen syndrome
    • Nager syndrome
    • Cleidocranial dysplasia
    • Miller syndrome
    • Treacher Collins syndrome
  • Craniofacial (hemifacial) microsomia
    • Goldenhar syndrome
  • Dermoid cyst
  • Ear anomalies
    • Microtia
    • Cryptocia
    • Lop ear
    • Prominent ear (conchal hypertrophy)
    • Stahls deformity
  • Encephalocele
  • Frontonasal dysplasia
  • Glioma (nasal)
  • Facial clefts
    • Tessier facial cleft
  • Facial synostosis
  • Fibrous dysplasia
  • Mandibulofacial dysostosis with microcephaly (MFDM)
  • Micrognathia (undersized jaw)
  • Neurofibromatosis
  • Retrognathia
    • Tongue-based airway obstruction (TBSO)
  • Orbital deformities
  • Parry-Romberg syndrome
  • Townes-Brocks syndrome

Why Norton Children’s Neuroscience Institute?

  • The Norton Children’s Hospital Comprehensive Epilepsy Center is a Level 4 epilepsy center, the highest rating available from the National Association of Epilepsy Centers. Norton Children’s Hospital has held this designation since 2013.
  • We are the first in Kentucky and among the first in the nation to use neurostimulation in a pediatric patient.
  • Regional neurology care is available for children across Kentucky and Southern Indiana. We travel to clinics in Bowling Green, Campbellsville, Corbin, Elizabethtown, Frankfort, Owensboro and Paducah, Kentucky; and Evansville, Indiana. We also perform a number of telemedicine visits each week.
  • The specialists with Norton Children’s Neuroscience Institute, affiliated with the UofL School of Medicine, use state-of-the-art technology to treat epilepsy, uncontrollable seizures and deep brain tumors in children who, in the past, would not be candidates for surgery, including:
    • Visualase: Technology that allows neurosurgeons to perform MRI-guided laser ablation surgery. Fewer than two dozen pediatric hospitals in the U.S. offer this technology.
    • Surgical Theater: Virtual reality technology that creates an immersive 3D view of a patient’s brain, allowing neurosurgeons, the patient and family to see inside the skull and brain to get a greater understanding of the condition and impact of potential procedures. Norton Children’s Hospital is the first hospital in the region to use this technology.
  • We offer dedicated multidisciplinary clinics for brain tumors, traumatic brain injuries, spina bifida, craniofacial injuries and disorders, epilepsy, muscular dystrophy, spasticity, headache/migraine, autism and neurocutaneous disorders.
  • Our multidisciplinary craniofacial program was the first established in the Midwest.
  • We offer a neurogenetics clinic to evaluate and treat children with neurogenetic syndromes.
  • We have a neuropsychology program that specializes in the evaluation of children and teens with a variety of neurological, neurodevelopmental and medical conditions, including brain tumors and epilepsy.
  • Outpatient neurology facilities in downtown Louisville are equipped with in-office electroencephalography (EEG) capabilities and laboratory services in the same building, creating a streamlined, family-centered environment.
  • We offer the region’s first clinic to treat children with immune-mediated neurological disorders.
Craniofacial – 1697

Norton Children’s Craniofacial Program

Connect with the Norton Children’s neurosurgery team
(502) 583-1697

Neuroscience

Norton Children’s Neuroscience Institute

Connect with the Norton Children’s
Neurology Team

(502) 588-3650


Connect with the Norton Children’s
Neurosurgery Team

(502) 583-1697


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