Fontan Procedure, Glenn Procedure, Heart, Hypoplastic Left Heart Syndrome, Norwood Procedure, Patient Stories

Born with half a heart, local boy may have biggest heart of all

It’s not a matter of how much heart you have, but how much heart you give. That is true for Johnathan Young. He was born with half of a working heart. Johnathan, age 11, is the youngest of Greg and Jill Young’s three children. When Jill had her 20-week pregnancy ultrasound, the clinician noticed something…

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Atrial Septal Defect, Glenn Procedure, Heart, Heart Catheterization, Hypoplastic Left Heart Syndrome, Norwood Procedure

Rare congenital heart disease treated through combination of surgical techniques

Alyssa Claycomb considers her first two children “healthy as horses.” So during her pregnancy with her youngest child, Cayden Horton, the thought of congenital heart disease never entered her mind, let alone a very rare and usually fatal complex heart abnormality. The anatomy scan during her 22-week OB/GYN visit would change everything. Anatomy ultrasound leads…

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Fontan Procedure, Glenn Procedure, Heart, Hypoplastic Left Heart Syndrome, Norwood Procedure, Single Ventricle Defects

For babies with complex heart conditions, care continues once it’s time to go home

Caring for children born with complex heart conditions can be challenging and stressful for families. Treatment involves long hospital stays and sometimes multiple open heart surgeries. Being well enough to go home is a big step, and the transition from round-the-clock hospital care to home requires education and close monitoring. These complex conditions such as…

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Adult congenital heart disease (ACHD), Blalock-Taussig (BT) Shunt, Cardiomyopathy, COVID19, Fontan Procedure, Glenn Procedure, Heart, Heart Failure, Hypoplastic Left Heart Syndrome, Norwood Procedure, Pulmonary Atresia, Pulmonary Hypertension, Tricuspid Atresia

COVID-19: Implications for children and adults with congenital heart disease

We do not currently have a lot of information about COVID-19 infection in children and adults with congenital heart disease and outcomes. However, based on what is known, we think some patients may be at higher risk of complications. In addition to social distancing, personal hygiene and other measures recommended at KYCOVID19.ky.gov, there are some…

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Heart, Hypoplastic Left Heart Syndrome, Patient Stories

Courageous Clay gets his heart transplant follow-up visits closer to home in Bowling Green

Nicole Pendino has a courageous son. In fact, his nickname is “Courageous Clay.” Many members of his hometown community in Bowling Green, Kentucky, have rallied around him over the past 12 years. In 2017 when Clay’s heart condition worsened and he was added to the heart transplant list, he was literally fighting for his life…

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Heart, Heart Transplant, Hypoplastic Left Heart Syndrome

Days-old heart transplant recipient now 32, healthy and loving ‘life to the fullest’

Infant heart transplants are never routine, but for a child who wouldn’t otherwise survive a congenital heart defect, they’ve become much more common. That wasn’t the case 32 years ago when Leslie Keown of Franklin, Kentucky, was born. Transplanting the heart of a days-old baby was almost unheard of, but it was a lifesaving procedure…

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Fontan Procedure, Glenn Procedure, Heart, Hypoplastic Left Heart Syndrome, Norton Childrens Hospital, Norwood Procedure

Hypoplastic left heart syndrome is a rare and complicated heart defect

One of the rarest and most complicated heart defects found in babies is hypoplastic left heart syndrome (HLHS) in which a critical underdevelopment of the left side of the heart leaves the right side doing most of the work. “With hypoplastic left heart syndrome, the left side of the heart can’t effectively pump blood to…

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Childrens Hospital Foundation, Heart, Heart Transplant, Home & BMW Raffle, Hypoplastic Left Heart Syndrome, Norton Childrens Hospital, Patient Stories

Once too fragile for a heart transplant, young P.J. and his family look to a bright future

Philmore Jackson III, is a courageous young man whose medical journey has taken many twists and turns. By age 3, Philmore, who goes by P.J., had been near death many times. By many accounts, there wasn’t much hope for him to live to his fourth birthday. Born in 2014 in Grand Rapids, Michigan, P.J. was…

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Heart, Heart Transplant, Hypoplastic Left Heart Syndrome, Patient Stories

Remembering Baby Calvin

In 1986, Robbie Cardin became Norton Children’s and Kentucky’s first pediatric heart transplant patient. As you can imagine, his plight was covered by the media. Robbie was referred to as “Baby Calvin” to protect his family’s privacy. Robbie was born by cesarean section at Hardin Memorial Hospital in Elizabethtown, Kentucky. Doctors knew right away something…

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