A petite fighter emerges during care for complex, life-threatening heart condition
As a newborn, Magnolia Lee Ford-Conway was diagnosed with transposition of the great arteries (TGA), a complex heart condition that requires early surgery after birth for survival. Today, the energetic 3-year-old from Bowling Green, Kentucky, loves books, dolls and playing with her older sister. Magnolia’s mom, Mekinsey Ford-Conway, clearly remembers the difficult days after her…
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Baby J.T.’s congenital diaphragmatic hernia journey: From NICU to first birthday
Christmas Day 2023 brought the most precious gift to Jeffrey “J.T.” Fletcher’s future parents — the news that they were expecting their first baby. They felt a whirlwind of nerves and excitement as they imagined their growing family. Everything seemed normal until a routine anatomy scan revealed something unexpected. “The ultrasound showed that the baby’s…
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Norton Children’s Hospital honors high school senior with graduation
Landen Lester, 18, has spent the last several months at Norton Children’s Hospital waiting for a lifesaving heart transplant. While other seniors were gearing up for prom, senior week and graduation, Landen was undergoing treatment for dilated cardiomyopathy and adjusting to life with a ventricular assist device. But one thing he wouldn’t miss? Graduation. Thanks…
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Southern Indiana boy hopeful as he waits for a new heart
Five-year-old Henry Jones of Salem, Indiana, is one tough kid. He’s been on the heart transplant list for well over a year, eagerly waiting for the right match to come along. Born with hypoplastic left heart syndrome, a condition where the left side of his heart is underdeveloped, Henry’s heart doesn’t pump blood the way…
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Open heart surgery through a mother’s eyes
Little fingers curled around ours as we waited in Room 3 in the early hours of Jan. 29, 2025. Blocks, Bluey and books splayed on a hospital blanket on the floor; tiny, socked feet with hearts stitched on the ankle strolled down the hall of Norton Children’s Hospital. Our daughter was about to undergo open…
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Hope and gratitude: Skylin’s journey to getting a new heart
Eight-year-old Skylin Williams, from New Albany, Indiana, is celebrating the new year in a way she once thought was a distant dream — at home with her family, thanks to a lifesaving heart transplant. After a difficult journey filled with uncertainty, Skylin has a story that serves as a testament to resilience, hope and the…
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Toddler defies odds after being diagnosed with rare genetic disease
Everleigh Johns is a miracle baby. She has an extremely rare genetic condition, but it wasn’t an easy or clear path to reach her diagnosis. For months, her care team never stopped treating her symptoms while searching for answers — until a special genetic test would finally reveal the cause of Everleigh’s struggles. By the…
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Side effects of energy drinks in kids and teens
Energy drinks, sports drinks and other beverages with high amounts of caffeine and added sugar can make kids and adults, sleepless, jittery and anxious. Increased heart rate and high blood pressure are other risks of highly caffeinated energy drinks. In children and teens, the child and parent may not be aware of all that’s in…
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Saved by the first tiny pacemaker, Heavenleigh finds her forever home
Anyone who’s met Heavenleigh falls in love with her grin. It’s been winning people over since she was an infant. Heavenleigh has an even bigger reason to smile these days. Almost three years after receiving the first specially-designed, tiny pacemaker for a premature infant, she is now officially adopted by the family who raised her….
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With a new heart, local teen sets sights on becoming a firefighter
Public service is in Gavin Ford’s blood. Gavin idolizes his grandfather, a deputy fire chief, and grew up hanging around a fire station in the Pleasure Ridge Park area of Louisville. His father is a local police officer. Gavin, 16, wants to follow in their footsteps. “I want to be a firefighter and arson investigator,”…
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Gratitude fuels family legacy gift to Norton Children’s Heart Institute
Meadow EmmaLou Boes loves princesses. The 2-year-old is obsessed with Elsa from “Frozen.” Among her growing vocabulary, three of her top words are, “Let it go!” “Meadow lives life at 100%,” said Sarah, Meadow’s mom. “You’d never know she was born with a life-threatening heart condition.” In summer 2022, Sarah and her husband, Ben, were…
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Titus Williams: Defying the odds with a grateful heart
Early beginnings and diagnosis Titus Williams’ journey as a heart patient started the moment he was born. As soon as he was delivered via cesarean section at a hospital in Elizabethtown, Kentucky, doctors noticed something was wrong. He was quickly transferred to Norton Children’s Hospital in Louisville, where doctors discovered he was born with pulmonary…
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