Dane was born fighting. At just 1 week old, he underwent complex open heart surgery. And now, at just 6 months old, he and his family are facing their greatest challenge: waiting for a heart transplant. On March 13, 2026, Dane officially was listed for a heart transplant at Status 1A, the highest priority level….
Ashlie Paulin and her family were expecting a joyful Christmas in Louisville when her son Booker was born on Dec. 23, 2021. Instead, they had to hope for a Christmas miracle that their baby boy would survive. Doctors discovered baby Booker had a serious heart condition that went undetected during Ashlie’s pregnancy. Suddenly, it was…
Hattie Etling’s heart journey began before she was born, with a diagnosis so complex it required advanced planning, innovative imaging and a highly specialized heart team. Hattie was diagnosed before birth with heterotaxy syndrome and complex congenital heart disease. Her care team at Norton Children’s Heart Institute knew her untypical anatomy would present extraordinary challenges….
Reviewed by Mary T. Killian, M.D., and Bahaaldin Alsoufi, M.D. Written by Courtney Hirz, a Frankfort, Kentucky, resident and mom to Noah, a young boy with a heart condition It started like any other childhood illness. In November 2024, my 5-year-old son Noah came home from school feeling sick. We assumed it was just another…
As a newborn, Magnolia Lee Ford-Conway was diagnosed with transposition of the great arteries (TGA), a complex heart condition that requires early surgery after birth for survival. Today, the energetic 3-year-old from Bowling Green, Kentucky, loves books, dolls and playing with her older sister. Magnolia’s mom, Mekinsey Ford-Conway, clearly remembers the difficult days after her…
Christmas Day 2023 brought the most precious gift to Jeffrey “J.T.” Fletcher’s future parents — the news that they were expecting their first baby. They felt a whirlwind of nerves and excitement as they imagined their growing family. Everything seemed normal until a routine anatomy scan revealed something unexpected. “The ultrasound showed that the baby’s…
Landen Lester, 18, has spent the last several months at Norton Children’s Hospital waiting for a lifesaving heart transplant. While other seniors were gearing up for prom, senior week and graduation, Landen was undergoing treatment for dilated cardiomyopathy and adjusting to life with a ventricular assist device. But one thing he wouldn’t miss? Graduation. Thanks…
Five-year-old Henry Jones of Salem, Indiana, is one tough kid. He’s been on the heart transplant list for well over a year, eagerly waiting for the right match to come along. Born with hypoplastic left heart syndrome, a condition where the left side of his heart is underdeveloped, Henry’s heart doesn’t pump blood the way…
Little fingers curled around ours as we waited in Room 3 in the early hours of Jan. 29, 2025. Blocks, Bluey and books splayed on a hospital blanket on the floor; tiny, socked feet with hearts stitched on the ankle strolled down the hall of Norton Children’s Hospital. Our daughter was about to undergo open…
Eight-year-old Skylin Williams, from New Albany, Indiana, is celebrating the new year in a way she once thought was a distant dream — at home with her family, thanks to a lifesaving heart transplant. After a difficult journey filled with uncertainty, Skylin has a story that serves as a testament to resilience, hope and the…
Everleigh Johns is a miracle baby. She has an extremely rare genetic condition, but it wasn’t an easy or clear path to reach her diagnosis. For months, her care team never stopped treating her symptoms while searching for answers — until a special genetic test would finally reveal the cause of Everleigh’s struggles. By the…
Energy drinks, sports drinks and other beverages with high amounts of caffeine and added sugar can make kids and adults, sleepless, jittery and anxious. Increased heart rate and high blood pressure are other risks of highly caffeinated energy drinks. In children and teens, the child and parent may not be aware of all that’s in…