Heart, NICU, Patient Stories

Complex congenital heart disease

Hattie Etling’s heart journey began before she was born, with a diagnosis so complex it required advanced planning, innovative imaging and a highly specialized heart team. Hattie was diagnosed before birth with heterotaxy syndrome and complex congenital heart disease. Her care team at Norton Children’s Heart Institute knew her untypical anatomy would present extraordinary challenges….

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NICU, Patient Stories

Born way too early, baby celebrates a homecoming  just in time for 1st holiday outside the hospital

On a seemingly normal July day, Charles and Samantha Rockwell never imagined their lives were about to change forever. Samantha, who was not even four months pregnant, had just finished a long, 15-hour workday when she began feeling stomach pains. “I thought maybe it was nothing,” she recalled. “But two hours later, we were holding…

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Neurosciences, News, NICU, Patient Stories

From micropreemie to football fan: Madden Baechle’s journey with hydrocephalus

Madden Baechle was born at just 25 weeks’ gestation, weighing 1 pound, 10 ounces. He spent 152 days in the neonatal intensive care unit (NICU) at Norton Children’s Hospital, facing life-threatening complications and undergoing 13 surgeries. Today, those NICU struggles feel like a distant memory, as 11-year-old Madden recently stepped onto the field at Western…

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Heart, NICU

Baby J.T.’s congenital diaphragmatic hernia journey: From NICU to first birthday

Christmas Day 2023 brought the most precious gift to Jeffrey “J.T.” Fletcher’s future parents — the news that they were expecting their first baby. They felt a whirlwind of nerves and excitement as they imagined their growing family. Everything seemed normal until a routine anatomy scan revealed something unexpected. “The ultrasound showed that the baby’s…

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Fetal Care, NICU, Patient Stories, Surgery

Tiny, early and a fighter through surgeries in his first weeks of life: Baby Cole’s story and his mom’s

When Amanda Redmon was 29 weeks pregnant — about seven months along — she received news that would change everything. An ultrasound revealed that her son, Cole, had an opening in the diaphragm, the muscle that separates the chest from the abdomen. When a child has this condition, known as congenital diaphragmatic hernia (CDH), the…

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Fetal Care, NICU, Patient Stories, Surgery

A Fighter from the start: Hayes Means’ journey of hope and healing

When Libby Means was pregnant with her son Hayes, she faced every expectant parent’s worst fear. Throughout her pregnancy, doctors discovered she had little to no amniotic fluid —a condition that often signals serious complications for the baby. The medical team discussed with Libby and her family the possibility that Hayes might not survive after…

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NICU

Norton Children’s helps child thrive despite rare diagnosis

From his very first breath, Vincent Taul defied expectations. “We weren’t sure what to expect, but doctors main concern was how he was going to be able to breathe when he was born,” said Madeline Taul, Vincent’s mom. Madeline recalls having a normal, healthy pregnancy until her 20-week ultrasound revealed something unusual. “I noticed there…

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NICU

Huston’s journey: A mother’s story of hope and resilience

At just 18 years old, Tara Goodwin faced every expectant mother’s worst fear: learning her unborn child might have a serious congenital medical condition. The beginning: An unexpected challenge During a routine prenatal appointment at 20 weeks, Tara’s OB/GYN delivered concerning news. Baby Huston was showing markers for a tracheoesophageal fistula (TEF), a rare congenital…

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NICU

Caspian’s miracle: From 1-pound baby to thriving toddler

Caspian Kerley is a tenacious little fighter. From a 1-pound baby who had slim odds of surviving — to a 1-year-old who is now thriving, Caspian just might be proof that miracles can happen inside the tiny baby unit at Norton Children’s Hospital. Caspian’s mom, Shadow, experienced a journey to motherhood that was filled with…

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Genetics, Neurosciences, NICU, Patient Stories

Willow Young and the rare genetic condition doctors caught just in time

When Gina Young gave birth to her daughter Willow, everything seemed perfect. After a smooth pregnancy and delivery, Willow came into the world healthy, crying and nursing well. Gina and her husband, Jarret, already had a thriving 2-year-old son named Maverick, and they brought Willow home just two days after her birth. Everything felt normal,…

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News, NICU, Patient Stories

Family ‘forever grateful’ to Norton Children’s team for saving 1.5-pound baby’s life

As an extreme preemie born at 24 weeks, Myla Hawkins faced uncertain odds for survival. It was a long journey in the Norton Children’s Hospital neonatal intensive care unit (NICU), with a care team that remained dedicated to providing lifesaving care during a series of medical emergencies. Myla overcame all these obstacles and is now…

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Fetal Care, NICU, Patient Stories, Surgery

6-year-old boy with life-threatening conditions at birth ‘flourishing’ today after surgeries at Norton Children’s

Before Leeland Brady was born, his parents never knew if they would see their little boy thrive. Before birth, he was diagnosed with two life-threatening conditions that would require many months of critical care in the Norton Children’s Hospital neonatal intensive care unit (NICU). The family, from Lebanon, Kentucky, spent nine months with Leeland in…

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