Fontan Procedure, Heart, Heart Transplant, Pulmonary Hypertension

What does a pediatric cardiac surgeon do?

A pediatric cardiac surgeon is a doctor with specialized training to perform heart surgery on children. The majority of heart problems requiring surgery on children are congenital heart defects. A skilled pediatric cardiac surgeon is capable of repairing all types of complex heart defects on newborns, babies, young children and teens. Given the complexity of…

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Fontan Procedure, Glenn Procedure, Heart, Hypoplastic Left Heart Syndrome, Norwood Procedure, Patient Stories

Born with half a heart, local boy may have biggest heart of all

It’s not a matter of how much heart you have, but how much heart you give. That is true for Johnathan Young. He was born with half of a working heart. Johnathan, age 11, is the youngest of Greg and Jill Young’s three children. When Jill had her 20-week pregnancy ultrasound, the clinician noticed something…

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Adult congenital heart disease (ACHD), Fontan Procedure, Heart

Specialized care for children and adults with a single ventricle

Andrea Lambert, M.D., decided to specialize in heart failure and heart transplant care after an especially challenging case during her cardiology training. The patient appeared to be out of options, but after a collaboration between different medical specialists, she underwent a new heart procedure that saved her life. “There’s something really exciting about being able…

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Ebstein Anomaly, Fontan Procedure, Glenn Procedure, Heart, Ventricular Septal Defect

Wonderfully Typical

As Audrey Sims talks on the phone, her 7-year-old twin boys can be heard enthusiastically enjoying the video game they are playing upstairs. “We picked up video games when the pandemic hit,” Audrey said. “It is something they could do while quarantined and inside. They also like Legos. Luckily, neither of them is ever alone,…

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Fontan Procedure, Heart, Patient Stories, Single Ventricle Defects, Transport Team

Child with single ventricle defect thriving after surgeries, catheterizations

Avery Conover says she wants to drag race someday, just like her father, Ricky Conover. According to her mother, Kayla Conover, Avery is very independent and doesn’t give up. Kayla says that fighting spirit is how Avery has weathered surgeries and care of a single ventricle congenital heart defect. Kayla was surprised at her 20-week…

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Fontan Procedure, Glenn Procedure, Heart, Hypoplastic Left Heart Syndrome, Norwood Procedure, Single Ventricle Defects

For babies with complex heart conditions, care continues once it’s time to go home

Caring for children born with complex heart conditions can be challenging and stressful for families. Treatment involves long hospital stays and sometimes multiple open heart surgeries. Being well enough to go home is a big step, and the transition from round-the-clock hospital care to home requires education and close monitoring. These complex conditions such as…

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Adult congenital heart disease (ACHD), Blalock-Taussig (BT) Shunt, Cardiomyopathy, COVID19, Fontan Procedure, Glenn Procedure, Heart, Heart Failure, Hypoplastic Left Heart Syndrome, Norwood Procedure, Pulmonary Atresia, Pulmonary Hypertension, Tricuspid Atresia

COVID-19: Implications for children and adults with congenital heart disease

We do not currently have a lot of information about COVID-19 infection in children and adults with congenital heart disease and outcomes. However, based on what is known, we think some patients may be at higher risk of complications. In addition to social distancing, personal hygiene and other measures recommended at KYCOVID19.ky.gov, there are some…

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Blalock-Taussig (BT) Shunt, Fontan Procedure, Glenn Procedure, Heart, Open Heart Surgery, Patient Stories

Schielar Skaggs almost didn’t make it – but he fought

Before he was born, Schielar Skaggs’ parents, Terry and Melissa, worried about the life their son would have. Would he survive childbirth? If he did, would his life be short and filled with suffering and surgeries? Tests during Melissa’s pregnancy showed Schielar had a complex congenital heart condition known as hypoplastic right heart syndrome with…

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Cardiac Catheterization, Cardiomyopathy, Ebstein Anomaly, Fontan Procedure, Glenn Procedure, Heart, Norton Childrens Hospital, Patient Stories, Ventricular Septal Defect

Collaborative heart care helps Indiana boy’s Ebstein anomaly

Audrey Sims’ first clue that her twins’ birth would be complicated came at 14 weeks of pregnancy, when a routine ultrasound found that one of her sons, Aiden, had a blocked lymph node, which can increase the risk of miscarriage. Audrey’s OB/GYN at King’s Daughters’ Hospital in Madison, Indiana, referred Audrey and her husband, Andrew,…

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Employee stories - Norton Childrens, Fontan Procedure, Heart

Bahaaldin Alsoufi, M.D., brings congenital heart disease expertise to Louisville

Bahaaldin Alsoufi, M.D., says that the road to becoming a pediatric cardiothoracic surgeon is a long one. He started his journey at 16, when he first vowed to become a heart surgeon. After earning his medical degree in Syria, he spent 24 years training and building his career at universities and hospitals in the United…

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Fontan Procedure, Glenn Procedure, Heart, Hypoplastic Left Heart Syndrome, Norton Childrens Hospital, Norwood Procedure

Hypoplastic left heart syndrome is a rare and complicated heart defect

One of the rarest and most complicated heart defects found in babies is hypoplastic left heart syndrome (HLHS) in which a critical underdevelopment of the left side of the heart leaves the right side doing most of the work. “With hypoplastic left heart syndrome, the left side of the heart can’t effectively pump blood to…

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