Ebstein Anomaly, Fontan Procedure, Glenn Procedure, Heart, Ventricular Septal Defect

Wonderfully Typical

As Audrey Sims talks on the phone, her 7-year-old twin boys can be heard enthusiastically enjoying the video game they are playing upstairs. “We picked up video games when the pandemic hit,” Audrey said. “It is something they could do while quarantined and inside. They also like Legos. Luckily, neither of them is ever alone,…

Read Full Story
Adult congenital heart disease (ACHD), Ebstein Anomaly, Heart, Pulmonary Atresia, Pulmonary Stenosis

Woman born with Ebstein anomaly thriving over 30 years later

Christa Taylor was born with Ebstein anomaly, pulmonary atresia and pulmonary stenosis, all forms of congenital heart disease (CHD). She manages her adult congenital heart disease with care from Norton Children’s Heart Institute — the same team and hospital where she had her heart care for more than 30 years. Growing up with congenital heart…

Read Full Story
Ebstein Anomaly, Heart, Patient Stories

Heart team helps firefighter ‘feel 100%’ after surgery for Ebstein anomaly

Luke Coward was born with Ebstein anomaly of the tricuspid valve, an extremely rare congenital heart condition that accounts for less than 1% of all congenital heart conditions. From the time he was diagnosed at 18 months old, he never felt limited by the condition. He was an active, healthy, happy child who just happened…

Read Full Story