After trying to get pregnant for five years, Kaitlyn Goff of Nelson County, Kentucky, couldn’t have been more excited to welcome her baby boy into the world. At that point, she knew something was wrong, and doctors confirmed her baby had a heart defect. “It was heartbreaking,” she said. “We finally got pregnant,” Kaitlyn said….
It’s not a matter of how much heart you have, but how much heart you give. That is true for Johnathan Young. He was born with half of a working heart. Johnathan, age 11, is the youngest of Greg and Jill Young’s three children. When Jill had her 20-week pregnancy ultrasound, the clinician noticed something…
As Audrey Sims talks on the phone, her 7-year-old twin boys can be heard enthusiastically enjoying the video game they are playing upstairs. “We picked up video games when the pandemic hit,” Audrey said. “It is something they could do while quarantined and inside. They also like Legos. Luckily, neither of them is ever alone,…
Alyssa Claycomb considers her first two children “healthy as horses.” So during her pregnancy with her youngest child, Cayden Horton, the thought of congenital heart disease never entered her mind, let alone a very rare and usually fatal complex heart abnormality. The anatomy scan during her 22-week OB/GYN visit would change everything. Anatomy ultrasound leads…
Caring for children born with complex heart conditions can be challenging and stressful for families. Treatment involves long hospital stays and sometimes multiple open heart surgeries. Being well enough to go home is a big step, and the transition from round-the-clock hospital care to home requires education and close monitoring. These complex conditions such as…
We do not currently have a lot of information about COVID-19 infection in children and adults with congenital heart disease and outcomes. However, based on what is known, we think some patients may be at higher risk of complications. In addition to social distancing, personal hygiene and other measures recommended at KYCOVID19.ky.gov, there are some…
Before he was born, Schielar Skaggs’ parents, Terry and Melissa, worried about the life their son would have. Would he survive childbirth? If he did, would his life be short and filled with suffering and surgeries? Tests during Melissa’s pregnancy showed Schielar had a complex congenital heart condition known as hypoplastic right heart syndrome with…
Audrey Sims’ first clue that her twins’ birth would be complicated came at 14 weeks of pregnancy, when a routine ultrasound found that one of her sons, Aiden, had a blocked lymph node, which can increase the risk of miscarriage. Audrey’s OB/GYN at King’s Daughters’ Hospital in Madison, Indiana, referred Audrey and her husband, Andrew,…
One of the rarest and most complicated heart defects found in babies is hypoplastic left heart syndrome (HLHS) in which a critical underdevelopment of the left side of the heart leaves the right side doing most of the work. “With hypoplastic left heart syndrome, the left side of the heart can’t effectively pump blood to…