Fontan Procedure, Heart, Patient Stories, Single Ventricle Defects, Transport Team

Child with single ventricle defect thriving after surgeries, catheterizations

Avery Conover says she wants to drag race someday, just like her father, Ricky Conover. According to her mother, Kayla Conover, Avery is very independent and doesn’t give up. Kayla says that fighting spirit is how Avery has weathered surgeries and care of a single ventricle congenital heart defect. Kayla was surprised at her 20-week…

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CICU, Fetal Care, Fetal Echocardiogram, Heart, Heart Failure, Long QT Syndrome

Girl with rare form of long QT syndrome thriving after specialized heart care

Parents Lena and Sixtus Iwu say that looking at their 5-month-old daughter Eleanor, you wouldn’t know what she’s been through with a congenital heart condition. The growing, active child born in December has a rare form of long QT syndrome. Her parents and physicians are amazed by how Eleanor continually has defied the odds against…

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Defibrillator and Pacemaker, Heart

Twin gets pacemaker for congenital heart block

The Jackson family discovered the first surprise of their second pregnancy at their scheduled 14-week appointment: They were having twin boys. A few days before Christmas 2017, the family went for the 20-week anatomy scan, which showed the first sign that there might be a heart issue with “baby B,” their son, Walker. Already reeling…

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Arterial Switch Operation, Atrial Septal Defect, Coarctation of the Aorta, Heart, Transposition of the Great Arteries, Ventricular Septal Defect

A routine prenatal ultrasound turns scary, but offers time to prepare for lifesaving heart surgery

For Lauren Fitzmaurice of Owensboro, Kentucky, after 30 weeks of pregnancy, her due date was starting to seem like it was within reach. Pregnant with her second son, Miles, she was diagnosed with gestational diabetes, prompting another ultrasound — all pretty normal stuff. But Lauren’s local OB/GYN noticed something not normal, an anomaly that needed…

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Cancer, Employee stories - Norton Childrens, Heart, Hematology, Infectious Disease, Nephrology

Helping kids avoid and overcome infections after transplants

Victoria A. Statler, M.D., works hard to educate children undergoing transplants on ways to avoid potentially dangerous infections. She also treats them when they do get sick. Children receiving transplanted organs or bone marrow take medicines to help their bodies accept the transplant. The drugs work by suppressing the immune system, so transplant recipients are…

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Atrial Septal Defect, Glenn Procedure, Heart, Heart Catheterization, Hypoplastic Left Heart Syndrome, Norwood Procedure

Rare congenital heart disease treated through combination of surgical techniques

Alyssa Claycomb considers her first two children “healthy as horses.” So during her pregnancy with her youngest child, Cayden Horton, the thought of congenital heart disease never entered her mind, let alone a very rare and usually fatal complex heart abnormality. The anatomy scan during her 22-week OB/GYN visit would change everything. Anatomy ultrasound leads…

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Childrens Hospital Foundation, Foundation, Heart

Send a stuffed animal to a kid at Norton Children’s Hospital this Valentine’s Day

People like you helped raise tens of thousands of dollars to support kids at Norton Children’s Hospital by sending stuffed animals through SendAFriend — an online store that ships fluffy friends with personalized messages. This Valentine’s Day, you can purchase a SendAFriend package to be delivered to a patient at Norton Children’s Hospital under an…

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Adult congenital heart disease (ACHD), Heart

Congenital heart defects can go unnoticed into adulthood

Undetected congenital heart defects (CHD) are rare, but some babies can grow into adolescence or early adulthood before noticing any symptoms. Congenital heart defects affect nearly 1 out of every 100 babies born in the United States, according to the Centers for Disease Control and Prevention. About a quarter of those need surgery before their…

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Childrens Hospital Foundation, Fetal Care, Foundation, Heart, Maternal-Fetal Medicine, Norton Childrens Outreach

Western Kentucky babies get state-of-the-art technology for detecting fetal heart anomalies

Doctors have a new way to detect heart and other conditions in Western Kentucky babies even before they’re born. Norton Children’s Maternal-Fetal Medicine, on the campus of Med Center Health, Bowling Green, Kentucky, recently installed state-of-the-art diagnostic and ultrasound equipment. The equipment is designed to identify complex anomalies in unborn babies through early detection so…

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Adult congenital heart disease (ACHD), Aortic Valve Disease, Cardiac Catheterization, Heart, Ross Procedure

Nurse with ACHD cares for kids with congenital heart disease

When Ashley Eastman, R.N., has an appointment to monitor her adult congenital heart disease (ACHD), she simply leaves her desk, walks to the front desk, checks in, and waits to be called. As a nurse clinician for Norton Children’s Heart Institute she understands the journey of a child with congenital heart disease. Diagnosed with a…

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COVID19, Heart, Infectious Disease, Rheumatology

Kids with MIS-C responding to treatments, but long-term outlook for coronavirus-related condition unclear

Kids with multisystem inflammatory syndrome in children (MIS-C) are recovering after treatments with anti-inflammatory drugs such as intravenous immunoglobulin and steroids, according to Brian J. Holland, M.D., chief of pediatric cardiology at Norton Children’s Heart Institute. Children who’ve come to the Norton Children’s Pediatric MIS-C Multidisciplinary Clinic are recovering after being hospitalized with moderate to…

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Adult congenital heart disease (ACHD), Heart

Adult congenital heart disease: Growing up and growing old with ACHD

In 1940, children born with severe congenital heart disease (CHD) had less than a 10% chance of living to age 18. Over the years advanced new treatments, including surgeries, were developed. Survival rates improved: Children born in 1960 with CHD had less than 20% survival rate. In 1980, the survival rate had improved to 80%….

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