Complex diagnosis and delivery The diagnosis was hypoplastic left heart syndrome with mitral stenosis and aortic atresia, a severe congenital heart condition in which the left side of the heart is critically underdeveloped. Lorenzo’s very small left ventricle could not function properly; the mitral valve was narrowed, and the aortic valve was completely blocked. With…
When Isabelle Black started running fevers after her 7th birthday, the explanation seemed simple: Strep throat was going around. She tested positive and took antibiotics. The fever went away — only to return again and again over the next few months. After four rounds of antibiotics, Isabelle started losing weight and didn’t have much of…
Kentucky’s child abuse rate is one of the highest in the U.S., according to the latest national report, with the commonwealth now nearly doubling the national child abuse rate. The “Child Maltreatment 2024” report, released this year by the U.S. Department of Health & Human Services Children’s Bureau, found the rate of child maltreatment victims…
Dane was born fighting. At just 1 week old, he underwent complex open heart surgery. And now, at just 6 months old, he and his family are facing their greatest challenge: waiting for a heart transplant. On March 13, 2026, Dane officially was listed for a heart transplant at Status 1A, the highest priority level….
There once was a girl named Elaina who had just turned 3 and was getting ready for big-girl school. She was nervous, but excited. Her mom noticed she was starting to walk on her tiptoes, but she thought it was just anxiety. She was also very pale, even though she called herself an “outy-outy girl”…
“I always remember running through the hallways. My mom would say she would always stand behind me with an IV pole because I was on 10 all the time.” – Sydney Wilson, patient care associate, Norton Children’s Hospital, and previous Norton Children’s patient treated for childhood cancer Some of Sydney Wilson’s earliest memories take place…
Ashlie Paulin and her family were expecting a joyful Christmas in Louisville when her son Booker was born on Dec. 23, 2021. Instead, they had to hope for a Christmas miracle that their baby boy would survive. Doctors discovered baby Booker had a serious heart condition that went undetected during Ashlie’s pregnancy. Suddenly, it was…
Hattie Etling’s heart journey began before she was born, with a diagnosis so complex it required advanced planning, innovative imaging and a highly specialized heart team. Hattie was diagnosed before birth with heterotaxy syndrome and complex congenital heart disease. Her care team at Norton Children’s Heart Institute knew her untypical anatomy would present extraordinary challenges….
On a seemingly normal July day, Charles and Samantha Rockwell never imagined their lives were about to change forever. Samantha, who was not even four months pregnant, had just finished a long, 15-hour workday when she began feeling stomach pains. “I thought maybe it was nothing,” she recalled. “But two hours later, we were holding…
When Eva Orlanka Taylor arrived in Kentucky from Haiti at just six years old, she brought with her more than a new name and a new home. She carried an illness no one had fully explained, one that had shaped her early childhood. At Norton Children’s, her family finally began to uncover the answers, and…
Madden Baechle was born at just 25 weeks’ gestation, weighing 1 pound, 10 ounces. He spent 152 days in the neonatal intensive care unit (NICU) at Norton Children’s Hospital, facing life-threatening complications and undergoing 13 surgeries. Today, those NICU struggles feel like a distant memory, as 11-year-old Madden recently stepped onto the field at Western…
As a newborn, Magnolia Lee Ford-Conway was diagnosed with transposition of the great arteries (TGA), a complex heart condition that requires early surgery after birth for survival. Today, the energetic 3-year-old from Bowling Green, Kentucky, loves books, dolls and playing with her older sister. Magnolia’s mom, Mekinsey Ford-Conway, clearly remembers the difficult days after her…