Patients or referring physicians can start care through the program by speaking with a nurse navigator.

Thanks to prenatal tests such as ultrasound, we can uncover a broad range of conditions that may require care after your baby is born.

While a small number of conditions can be treated while your baby stays in your uterus, including fetal anemia, nearly all others can be done only after birth. The Fetal Care Program team, coordinated by your nurse navigator, will prepare for your baby’s birth and plan any treatment ahead of time.

In some cases, your baby may need care immediately after birth. More often, care can be arranged less urgently.

You may need to deliver by cesarean section. Depending on your condition or the condition of your baby, you may be able to deliver at your home hospital. Some conditions require delivery at Norton Hospital or Norton Women’s & Children’s Hospital, which have access to neonatal intensive care units.

Congenital heart defects and neural tube defects are some of the most common conditions treated by our Fetal Care Program specialists. Our providers are trained and experienced in a broad range of conditions that can affect an unborn baby. Below is more information about some common conditions.

Hybrid heart surgery saves baby’s life

Young Hudson Hogue is shown with his cardiothoracic surgeon, Bahaaldin Alsoufi, M.D.

At Jessica’s 20-week ultrasound, her doctor became concerned about Hudson’s heart.

Congenital Heart Defects

Some of the most common conditions requiring fetal care are abnormalities in the heart that are present at birth (congenital), rather than acquired later in life. Norton Children’s Heart Institute uses advanced technologies, including fetal echocardiography and 3D echocardiography, to confirm a diagnosis and monitor the unborn baby’s heart.

The Norton Children’s Heart Institute Fetal Cardiology Program specializes in identifying, preparing for and treating potentially life-threatening heart conditions in newborns. Diagnosing them before the baby is born allows congenital heart specialists to determine a treatment plan ahead of time and provide care immediately after birth if necessary.

The Norton Children’s Heart Institute team performs fetal echocardiograms in the Louisville area and evaluates tests performed across Kentucky.

Neural Tube Defects

During very early fetal development, the neural tube develops. It will go on to form the brain and spine. If the tube doesn’t close completely, it causes a defect.

Neural tube defects typically require care from a number of specialists, including neurosurgeons, orthopedic surgeons, physical and occupational therapists, spine specialists, as well as urologists and gynecologists.

The Norton Children’s Spina Bifida Clinic offers coordinated care and education about neural tube defects. Our specialists are available in the same location on the same day, allowing families to see multiple providers in one visit. They treat:

Neurological and Central Nervous System Conditions

  • Arteriovenous malformations
  • Agenesis of the corpus callosum (ACC)
  • Arachnoid cyst

Our craniofacial specialists work closely with specialists in dentistryear, nose and throat (otolaryngology); oral and maxillofacial surgery; and pediatric rehabilitation to provide comprehensive care for a full range of craniofacial conditions, including:

  • Cleft lip and/or palate
  • Craniosynostosis
  • Cystic fibrosis
  • Bronchopulmonary sequestration (BPS)
  • Congenital diaphragmatic hernia (CDH)
  • Congenital pulmonary airway malformation (CPAM/CCAM)
  • Pulmonary hypoplasia
  • Gastroschisis
  • Omphalocele
  • Bladder exstrophy
  • Bladder outlet obstruction (BOO)
  • Horseshoe kidney
  • Hydronephrosis
  • Lower urinary tract obstruction (LUTO)
  • Multicystic dysplastic kidney (MCDK)
  • Polycystic kidney disease
  • Posterior urethral valves (PUV)
  • Renal agenesis
  • Ureteropelvic junction obstruction (UPJO)
  • Achondroplasia
  • Clubfoot
  • Polydactyly
  • Thanatophoric dysplasia
  • Cystic fibrosis
  • Cystic hygroma
  • DiGeorge syndrome
  • Down syndrome (Trisomy 21)
  • Increased nuchal translucency (e.g., Down syndrome)
  • Noonan syndrome
  • Trisomy 13
  • Trisomy 18
  • Turner syndrome
  • Absent nasal bone
  • Choroid plexus cysts
  • Esophageal atresia/tracheoesophageal fistula (EA/TEF)
  • Ex utero intrapartum treatment (EXIT) procedures
  • Fetal anemia
  • Fetal growth restriction (FGR)/small for gestational age (SGA)
  • Fetal infections (CMV/HIV/hepatitis B, hepatitis C)
  • Hydrops fetalis
  • Imperforate anus
  • Intestinal atresias (jejunal, ileal, d/Duodenal)
  • Neck masses
  • Neonatal opioid withdrawal syndrome (NOWS)
  • Ovarian cysts
  • Teratomas (including sacrococcygeal teratoma)
  • Twin-to-twin transfusion syndrome (TTTS)
  • Lymphatic malformations

Why Choose the Norton Children’s Fetal Care Program

  • You’ll get comprehensive, state-of-the-art testing and counseling that helps ensure you and your baby receive advanced, personalized care before, during and after delivery.
  • Our maternal-fetal medicine specialists, pediatric subspecialists, neonatologists, genetic counselors and nurse navigators work together with your Fetal Care Program nurse navigator to create an exceptional care plan for your baby’s care.
  • We use state-of-the-art fetal imaging and diagnostic techniques to detect fetal conditions early and create personalized treatment plans.
  • Your delivery can be scheduled steps away from the Norton Children’s Hospital Level IV neonatal intensive care unit (NICU) — the highest level NICU in Louisville and Southern Indiana — or the Level III NICU at Norton Women’s & Children’s Hospital.
  • You may be able to deliver at your home hospital. If necessary, the Norton Children’s Hospital “Just for Kids” Transport Team will bring your baby to a Norton Children’s NICU in Louisville.
  • Fetal echocardiogram locations across Kentucky are read by fetal cardiology specialists in Louisville, reducing the need to travel.
  • Norton Children’s accepts Medicaid and most major commercial insurance plans. Financial assistance also is available.
  • Your free Norton MyChart account provides an option for secure communication with your care team and other features to help manage your care.

Related Stories

6-year-old boy with life-threatening conditions at birth ‘flourishing’ today after surgeries at Norton Children’s
Hybrid heart surgery saves baby’s life
For fetal cardiology patient, Norton Children’s Heart Institute team ‘became family’
Preparing for a baby with a heart condition