Autism, Developmental-behavioral Pediatrics and Genetics, Neurosciences, Norton Childrens Hospital, Patient Stories, Rett Syndrome

Bardstown girl living with Rett syndrome, a rare autism-like condition

Grace Hatfield seemed to be developing like a normal toddler. She was walking, talking and interacting with family. But as she approached 15 months, her development seemed to start going in reverse. “Grace began losing words,” said Kim Hatfield, Grace’s mom. “Then, while talking to her, she’d start to zone out — just staring at…

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Norton Childrens Hospital, Pulmonology

What is cystic fibrosis?

Cystic fibrosis (CF) affects about 30,000 children and adults in the United States, with approximately 1,000 cases diagnosed each year, according to the Cystic Fibrosis Foundation Patient Registry. What is CF? Cystic fibrosis is a progressive, genetic disorder that affects the lungs, pancreas and other organs. This lifelong condition is caused by mutations in the…

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COVID19, Heart, Infectious Disease, Rheumatology

Kids with MIS-C responding to treatments, but long-term outlook for coronavirus-related condition unclear

Kids with multisystem inflammatory syndrome in children (MIS-C) are recovering after treatments with anti-inflammatory drugs such as intravenous immunoglobulin and steroids, according to Brian J. Holland, M.D., chief of pediatric cardiology at Norton Children’s Heart Institute. Children who’ve come to the Norton Children’s Pediatric MIS-C Multidisciplinary Clinic are recovering after being hospitalized with moderate to…

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Adult congenital heart disease (ACHD), Heart

Adult congenital heart disease: Growing up and growing old with ACHD

In 1940, children born with severe congenital heart disease (CHD) had less than a 10% chance of living to age 18. Over the years advanced new treatments, including surgeries, were developed. Survival rates improved: Children born in 1960 with CHD had less than 20% survival rate. In 1980, the survival rate had improved to 80%….

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Cancer

Nurse navigator found her ‘niche’ in childhood cancer

When Frances Price, R.N., was a teenager, she felt a calling to nursing. She had watched her grandfather struggle with health complications, including heart attacks and strokes. Today, as a patient navigator with Norton Children’s Cancer Institute she helps children and families through their entire journey with childhood cancer. Finding her ‘niche’ in nursing and…

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Brain Tumor, Cancer

Pediatrician, brain surgeon and oncologist team up to help boy recover

In 2016, not long after his fourth birthday, Jameson Milby started having headaches, nausea and vomiting. “I’m one of those moms who calls the doctor for a scrape on the knee, so I made an appointment right away,” said his mother, Angela. The family’s pediatrician, James A. Tavelli, M.D., with Norton Children’s Medical Group –…

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COVID19, Flu

Qué hacer con un niño pequeño que tose por la noche

¿Un niño pequeño tose cuando está acostado? ¿Quizás no tosió en absoluto durante el día, o no tosió mucho, pero empezó a toser por la noche? La razón es que la mucosidad de los senos nasales se drena hacia la garganta mientras su niño está en posición horizontal, lo que desencadena la tos. El asma…

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COVID19, Flu

¿Cuándo es la gripe o el COVID-19 una emergencia para los niños?

Son las 2 a.m. y su hijo tiene fiebre alta. ¿Los signos de la gripe están ahí o es COVID-19? En ese momento, los pensamientos de los padres pueden acelerarse: “¿Debo llamar al pediatra o ir al departamento de emergencias?” Haga un inventario de cómo se ve su hijo y cómo está actuando según la…

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Rheumatology

Is there a juvenile arthritis diet?

Eating a balanced diet is important for supporting the health and immune system of all growing children. Parents may look to a certain diet in the hopes that it may lessen JIA symptoms for their child. Unfortunately, there is no special diet that can cure JIA. There’s also no evidence that certain foods or nutrients…

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Pulmonology

Asthma peak week: What parents should know

There is a week every September when asthma attacks, asthma episodes and hospitalizations from asthma are at their highest. Known as “asthma peak week” by the Asthma and Allergy Foundation of America, the third week of September provides a perfect storm of asthma triggers being in abundance, such as ragweed pollen, mold, respiratory infections and…

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Cancer, Leukemia

Faced with childhood cancer, family chooses joy over sadness

“Your child has cancer.” Those are words no parent ever wants to hear. It’s heartbreaking news that takes you on an emotional roller coaster, filled with difficult decisions. Emily and Jason Fox’s son Boone was diagnosed with acute myeloid leukemia (AML) in May 2019 at the age of 2. “Boone has Down syndrome, so we…

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Foundation, NICU

How to make an impact now and in the future

Walter Clare has a warm, welcoming smile and a giving heart. For Walter, that spirit of generosity led him to making a legacy gift, or planned gift, to benefit Norton Children’s Hospital. With a desire to make an impact, honor his late wife and help critically ill children while also lessening stress for their families,…

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