On Valentine’s Day, 2020, Angel Florian received a 6-foot-tall plush rose from her boyfriend. It was a substitute for the real flowers he wanted to give her but couldn’t because her weakened immune system made it too risky. It was a year earlier, just after her 17th birthday, that Angel received a diagnosis of myelodysplastic…
Jennifer Pascual, like most teens, has many interests. The 13-year-old, who lives in Southern Indiana, enjoys spending time with her large family. She loves animals and has many pets. She likes to draw and paint, play music and sing. “I’m learning to play the ukulele,” she said. “It’s really fun.” Unlike most teens, however, Jennifer…
Louisville philanthropist Tom Dunbar will provide support up to $1.5 million to the Norton Children’s Hospital Foundation for pediatric cancer research at Norton Children’s Cancer Institute, affiliated with the UofL School of Medicine. This gift through the Evan Dunbar Foundation will create the Evan Dunbar Pediatric Cancer Research Program. Dunbar has been a long-time supporter…
Kelsie Cooksey was devastated by the news from Katlyn Claywell, her friend, co-worker and Burkesville, Kentucky, neighbor, that Katlyn’s 19-month-old daughter Kamryn had been diagnosed with leukemia and needed prayers. Kelsie had a boy around the same age and felt her friend’s anguish. Days before, Katlyn had noticed a rash on her little girl with…
Avery Conover says she wants to drag race someday, just like her father, Ricky Conover. According to her mother, Kayla Conover, Avery is very independent and doesn’t give up. Kayla says that fighting spirit is how Avery has weathered surgeries and care of a single ventricle congenital heart defect. Kayla was surprised at her 20-week…
The Norton Children’s Research Institute, affiliated with the UofL School of Medicine, will participate in a phase 2/3 clinical trial of the Pfizer-BioNTech COVID-19 investigational vaccine for healthy children ages 6 months to 4 years. The study will evaluate safety, tolerability and immune response in this age group. It is the only site in Louisville…
Staying at the forefront of new developments that can help children with epilepsy, headaches and other conditions affecting the brain, nervous system, spinal cord, nerves, and muscles comes naturally to Amanda Rogers, M.D., a child neurologist and director of pediatric neuromuscular disorders with Norton Children’s Neurology, affiliated with the UofL School of Medicine. Dr. Rogers’…
Alex and Aaron Haas had heard of spinal muscular atrophy (SMA) — a former neighbor of Aaron’s had a grandchild who died from it — but didn’t know much about it when 3-month-old Riley seemed less active than a family friend’s baby of the same age. A small knot in the back of Riley’s neck…
Pediatric neurology nurse practitioner Stephanie Wagner, APRN, offers children in Owensboro, Kentucky, and the surrounding area a full-time local provider for neurological care. “I really try to keep my patient care family-centered and listen to each family’s needs and make an individual plan of care based off of that,” Stephanie said. Stephanie offers care for…
For the past 25 years, Gregory N. Barnes, M.D., PhD. has worked with thousands of families to help diagnose, adapt to and overcome autism. Autism is personal to Dr. Barnes, whose son, Joshua, was diagnosed with the condition as a young child. It was clear to Dr. Barnes, a pediatric neurologist with the Norton Children’s…
The day before Thanksgiving 2018, the Howell family was traveling from Louisville to Frankfort to visit relatives. During the drive, 4-week-old Brooks started crying. It was the beginning of the family’s journey with the rare disease spinal muscular atrophy with respiratory distress, Type 1 (SMARD1). “It was a very different cry,” said Jessica Howell, Brooks’…
Rolando M. Puno, M.D., spine specialist with the Norton Children’s Spina Bifida Clinic and Norton Leatherman Spine, likes solving difficult challenges. Patients from around the world have come to Dr. Puno for surgery and treatment of their complex spinal conditions. “It’s kind of my nature, I guess,” Dr. Puno said. “If I see an issue,…