Genetics, Neurosciences, NICU, Patient Stories

Willow Young and the rare genetic condition doctors caught just in time

When Gina Young gave birth to her daughter Willow, everything seemed perfect. After a smooth pregnancy and delivery, Willow came into the world healthy, crying and nursing well. Gina and her husband, Jarret, already had a thriving 2-year-old son named Maverick, and they brought Willow home just two days after her birth. Everything felt normal,…

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Genetics, Heart, News, NICU, Patient Stories, Surgery

Toddler defies odds after being diagnosed with rare genetic disease

Everleigh Johns is a miracle baby. She has an extremely rare genetic condition, but it wasn’t an easy or clear path to reach her diagnosis. For months, her care team never stopped treating her symptoms while searching for answers — until a special genetic test would finally reveal the cause of Everleigh’s struggles. By the…

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