Diaphragmatic hernia is a condition affecting about one in 2,200 babies. It is a defect in the diaphragm that causes the abdominal organs to move into the chest.

The Norton Children’s Congenital Diaphragmatic Hernia Clinic was established to address the many health needs of children with this complex condition. The clinic provides a team approach to coordinated specialty care with the goal of convenience for families. Multiple specialists work together to develop an individualized treatment plan for each child.

Specialties Available Through the Clinic

• Cardiology
• Neonatology
• Nutrition
• Occupational therapy
• Physical therapy
• Pulmonology
• Speech therapy
• Surgery

Access to a Nurse Navigator

A nurse navigator is a medical professional who serves as a single point of contact for families. The nurse navigator uses clinical expertise and training, along with collaboration with a multidisciplinary team, to provide education and guidance for families navigating the health care process. Nurse navigators serve as advocates for patients and families.

Our nurse navigator can help with:

• Coordinating care
• Scheduling appointments
• Providing emotional support
• Finding resources
• Understanding treatment plans
• Following up after doctors’ visits