Heart, Legislation

8-year-old heart transplant recipient speaks on Capitol Hill

Eleanor Westenhofer, an 8-year-old heart transplant patient, led a delegation to Washington. Eleanor, along with a team from Norton Children’s Hospital, met with lawmakers to make sure they keep sick kids in mind as they work on health care legislation. She took part in Speak Now for Kids 2019 Family Advocacy Day. Eleanor shared this about…

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Legislation, Patient Stories

Louisville second-grader heads to U.S. Capitol to advocate for kids’ health

Hey there! My name is Eleanor and I’m 8 years old. I love drawing and art. I also really like to play with Legos with my little sister. I’m in the second grade, and the classes that I enjoy the most are science and reading. Pasta is my most favorite food. I have a lot…

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Allergy and Immunology, Heart, Legislation, Patient Stories

After heart transplant, girl takes her story to Washington

At age 8, Scharnese Cook was very active. She ran track at school and was involved in various activities. In May 2015, she began to have trouble breathing. At first, it appeared to be a severe asthma attack. The situation became critical when emergency medical personnel found that her pulse was much too rapid. A…

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Legislation, Teens

How I took on Capitol Hill

Anna-Maria Beck, a 17-year-old Sacred Heart Academy student with an inoperable brain tumor, led a delegation to Washington, D.C. Beck, along with a team from Norton Children’s Hospital, met with lawmakers to push new legislation, including the Advancing Care for Exceptional Kids Act of 2015 (ACE Kids Act), which would make it easier for children…

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