About Celiac Disease Celiac disease is an autoimmune disorder caused by an intolerance to gluten. Gluten is the general name of the proteins found in wheat, rye, and barley and other grains derived from them. In kids with celiac disease, gluten damages villi, the finger-like projections in the small intestine responsible for absorbing nutrients from food. When the villi are damaged, the body can't absorb nutrients the body needs to grow. If that happens, a child can become malnourished. Celiac disease — also known as celiac sprue, gluten-sensitive enteropathy, and non-tropical sprue — can lead to a wide variety of symptoms in different people. Infants may not gain weight and height as expected (a condition called failure to thrive). Older kids can have diarrhea, abdominal pain and bloating, weight loss, fatigue, or painful skin rashes. Some people who have celiac disease have no symptoms at all. Doctors don't know for sure what triggers the immune system to react to gluten in people who have celiac disease. There is no cure, although researchers are working on developing enzyme pills to help with the digestion of the toxic part of gluten that causes intestinal damage. If your child is diagnosed with celiac disease, there are ways to minimize symptoms and any damage to the intestines. Symptoms Symptoms of celiac disease can happen at any time in a child's life. Some kids have symptoms the first time they are exposed to gluten, while others develop symptoms after safely consuming gluten products for years. A baby might show the first signs of celiac disease shortly after starting on solid foods such as cereals. Those signs might include diarrhea, stomach pain, and not gaining weight at a healthy pace. Skin rashes also might appear, especially around the elbows, buttocks, and knees. Over time, the child might develop anemia and mouth sores, and become withdrawn or irritable. Causes The causes of celiac disease are unknown. It has been linked to other health conditions, including Down syndrome, Diabetes mellitus, Williams syndrome, thyroid disorders, and selective immunoglobulin IgA deficiency. Celiac disease tends to run in families, so if there is a family history of celiac disease, a child may have a higher risk of developing it. If one child is diagnosed with celiac disease, his or her siblings, parents, and grandparents should be tested too, as they may have the disease but no symptoms. Celiac disease that goes undiagnosed in adults for a long time can lead to serious health problems. Diagnosis Diagnosing celiac disease usually begins with a simple blood test that measures the level of antibodies to gluten and other proteins in the lining of the intestine. If high levels of these antibodies are found, the doctor will likely order a biopsy of the small intestine and send it to a laboratory for testing. Doctors take this tissue sample by inserting a long, thin tube (called an endoscope) through the mouth and stomach into the small intestine. A child is usually moderately sedated or given general anesthesia for the procedure. Dietary Changes If your child is diagnosed with celiac disease, the doctor will guide you on which foods your child can eat and which to avoid. Because these changes will greatly affect your family's everyday life and your child's diet, the doctor may suggest that you meet with a nutritionist for advice. Wheat, barley, rye, and related grains should be eliminated from your child's diet. But because there's no law requiring food manufacturers to list gluten on food labels, this can be difficult. In general, it's wise to stay away from foods that contain these gluten-related ingredients: bouillon and broths breading (such as the coating on breaded chicken cutlets, etc.) brown rice syrup (often made from barley) cake flour (made from wheat) caramel color (occasionally made from barley) communion wafers couscous creamed or breaded vegetables dextrin (a rare ingredient that may be made from wheat; maltodextrin is OK) dry roasted nuts (processing agents may contain wheat flour or flavorings) fried chicken french fries (if they've been coated in flour) gravies and sauces (including some tomato and meat sauces) imitation bacon, crab, or other seafood luncheon and processed meats malt or malt flavoring (usually made from barley) marinades matzo modified food starch (most food manufacturers now list the source of this ingredient; e.g., modified cornstarch, which is OK, or modified wheat starch, which is not) nondairy creamer pastas salad dressings seasonings (pure spices are OK, but check seasoning mixes for gluten-containing additives) some herbal teas and flavored coffees soup mixes and canned soups soy sauce and soy sauce solids (they may be fermented with wheat; don't use them unless you verify they're OK with a dietitian) spreads, soft cheeses, and dips stuffings thickeners udon noodles wheat-free products (many wheat-free cookies and breads contain barley or rye flour, which contain gluten, and other gluten-containing ingredients) yogurts with wheat starch It is generally safe for kids with celiac disease to eat oats that come from an uncontaminated source. That means that the oats have been processed in a mill that doesn't process grains that contain gluten on the same equipment. The label on the package of oats should clearly state if that's the case. To avoid gluten — and prevent triggering your child's celiac symptoms — it's important to carefully read the labels of all foods before you buy them or let your child consume them. And help your child learn to do it too. When in doubt, the safest thing to do is to assume the product contains gluten and leave it out. In the United States, all foods must be clearly labeled if they contain any of the top eight food allergens, including wheat. However, wheat-free doesn't mean gluten-free, as some wheat-free products may have gluten-containing grains like barley and rye in them. Lawmakers are working to make labels easier to understand by requiring companies to identify other components, such as hidden ingredients and barley and rye. Eating Away From Home People with celiac disease aren't limited to eating at home. With experience and knowledge, you'll be able to figure out which dishes at restaurants or friends' homes contain gluten. A local support group might have a list of restaurants where the chef is familiar with the gluten-free diet. Some restaurants now offer gluten-free dishes on their menus — be sure to ask. Sometimes, no matter how well prepared you are, you might not be able to find out if a particular food is gluten-free. When in doubt, order something else for your child to eat! Here are some tips to remember when choosing foods: Start with the foods your child can eat. Foods and ingredients that someone with celiac disease can eat and use in cooking include: foods made with the flours of corn, rice, buckwheat, sorghum, arrowroot, garbanzo beans (chickpeas), quinoa, tapioca, teff, and potato (provided other ingredients in your recipe do not contain gluten). Also OK are all plain meats, fish, chicken, legumes, nuts, seeds, oils, milk, cheese, eggs, fruits, and vegetables. Be on the lookout for possible cross-contamination. Even when eating or preparing foods that are gluten-free, if these foods come into contact with foods that contain gluten, there is a risk of cross-contamination. For example, crumbs from regular wheat bread can find their way into jams, spreads, or condiments if people aren't careful to use a fresh knife or utensil each time. Keeping condiments in squeezable bottles and using separate jams and spreads for people with celiac disease is a great idea. It's also wise to keep a separate toaster for gluten-free bread. If you bake with products that contain gluten, thoroughly clean appliances, utensils, and work surfaces before preparing gluten-free products. Remember to wash your hands well and often when you're cooking and preparing food. In restaurants, tell the server or the kitchen staff about your child's condition and make sure that they know that it's important that your child's food not contain any gluten or related ingredients. Most grocery stores carry some gluten-free bread, cereal, baking mixes, cookies, crackers and other products. Health food stores and natural food markets may have wider selections of these foods. It's not a good idea to use gluten-free products from bulk food bins because of the risk of cross-contamination. Even if you take precautions, chances are your child may accidentally ingest gluten at some point. That's OK — a single small amount of gluten ingestion may cause mild inflammation in the gut but probably won't cause any immediate symptoms. Normally, the lining of small intestine completely renews itself every 3–4 days, so after a single incident the damaged cells are quickly replaced with new ones. However, repeated exposure to gluten will lead to ongoing damage of the intestinal lining. Helping Your Child Cope What experts know about celiac disease is developing so rapidly that many books and websites are out of date. To make sure you always have the most current and accurate information, consider joining one of the national celiac organizations. There are even gluten-free summer camps and special support groups just for kids and teens. If your child has celiac disease, it's important to educate the other adults in your child's life — other caregivers, teachers, school nurses, camp counselors, babysitters, and friends' parents — about the condition, and to explain the importance of keeping foods with gluten away from your child. Teach older kids not to accept foods from others unless they're from someone who is known to be diligent about ensuring the food is gluten-free. It may be difficult for your child to adapt to a gluten-free diet and, at first, it can be challenging for you to make all the right accommodations. But over time, you and your child will get to know which foods are safe and which are off-limits, making it easier to find meals, snacks, and ingredients that won't cause celiac symptoms. Symptoms get better quickly after gluten is eliminated from the diet and kids make the transition to gluten-free eating. But kids who have mild or no symptoms may have a more difficult time with making and keeping dietary changes. In such cases, strong family support is especially important. It also helps to find support groups, many of which have special events for kids to help them realize they're not alone with these dietary problems. Talk to your doctor about finding such resources in your community. Back to Articles Related Articles What's the Difference Between a Food Allergy and a Food Intolerance? Food allergies and food intolerances, like lactose intolerance, are not the same. Find out more. Read More About Recipes for Teens With Celiac Disease These recipes are especially for kids who need a gluten-free diet. Kids who need a gluten-free diet must avoid foods that contain gluten, which is a type of protein found in many foods. Read More About Recipes for Kids With Celiac Disease These recipes are especially for kids who need a gluten-free diet. Kids who need a gluten-free diet must avoid foods that contain gluten, which is a type of protein found in many foods. Read More Blood Test: Tissue Transglutaminase IgA, IgG The tissue transglutaminase IgA, IgG test is usually done to help doctors diagnose celiac disease. Read More Figuring Out Food Labels Find out how to make healthy food choices for your family by reading food labels. Read More Figuring Out Food Labels The food label on a food package is a lot like the table of contents in a book - it tells you exactly what the food contains. Read our article for kids for more about food labels. Read More Food Allergies and Food Sensitivities Find more than 30 articles in English and Spanish about all aspects of food allergies in children. Read More Food Labels Look at any packaged food and you'll see the food label. This nutrition facts label gives the lowdown on everything from calories to cholesterol. Read more about food labels. Read More Down Syndrome Down syndrome is a condition in which extra genetic material causes delays in the way a child develops, both physically and mentally. Read More Failure to Thrive Most kids grow well but some have ”failure to thrive.” This means they don't gain weight as expected and may not grow as tall as they should. Read More Digestive System The digestive process starts even before the first bite of food. Find out more about the digestive system and how our bodies break down and absorb the food we eat. Read More Going to School With Food Allergies With preparation and education, a child with a food allergy can stay safe at school. Read More Celiac Disease People who have celiac disease, a disorder that makes their bodies react to gluten, can't eat certain kinds of foods. Find out more - including what foods are safe and where to find them. Read More Celiac Disease People with celiac disease can't eat gluten, which is found in many everyday foods, such as bread. Find out more by reading this article for kids. Read More Food Allergies Food allergies can cause serious and even deadly reactions in kids, so it's important to know how to feed a child with food allergies and to prevent reactions. Read More Note: All information is for educational purposes only. For specific medical advice, diagnoses, and treatment, consult your doctor. © 1995-2021 KidsHealth®. All rights reserved. Images provided by The Nemours Foundation, iStock, Getty Images, Veer, Shutterstock, and Clipart.com.