Alex and Aaron Haas had heard of spinal muscular atrophy (SMA) — a former neighbor of Aaron’s had a grandchild who died from it — but didn’t know much about it when 3-month-old Riley seemed less active than a family friend’s baby of the same age. A small knot in the back of Riley’s neck…
Spinal muscular atrophy, or SMA, is a condition that progressively causes the loss of motor neurons (anterior horn cells). SMA affects about 1 in 11,000 births and is the No. 1 genetic cause of death for infants. What do you know about the condition –– and the exciting new treatments that can help stop its progression?…