Tuberous sclerosis (TS), also called tuberous sclerosis complex (TSC), is a very rare genetic disorder that affects every child differently. The condition can cause tumors to grow in organs, including the brain, skin, heart, eyes, kidneys and lungs. The tumors are considered benign, or noncancerous, but where they appear in the body can cause a variety of health issues and conditions, including seizures and developmental delays. TS symptoms usually appear before a child is 6 months old, and the severity of the condition varies.

The Norton Children’s Tuberous Sclerosis Clinic is made up of board-certified, fellowship-trained physicians from across the Norton Children’s network of specialists, who understand your child’s TS. Our team aims to create a holistic, personalized treatment plan to meet your child’s unique needs.

Our multidisciplinary approach to care allows your child to be evaluated by several pediatric specialists all in the same visit. These specialists share clinic space, working to provide comprehensive, thoughtful evaluation and treatment to manage symptoms and prevent complications.

Norton Children’s Tuberous Sclerosis Clinic Specialties

The Norton Children’s Tuberous Sclerosis Clinic core team consists of board-certified, fellowship-trained physicians, advanced practice providers, therapists, nurses and other health care professionals, including:

• Nephrology to help your child manage conditions such as polycystic kidney disease and renal angiomyolipomas related to TS
• Neurology to help your child manage seizures or other nervous system disorders related to TS