Help Norton Children’s Researchers Understand the Long-term Effects of COVID-19

Researchers at Norton Children’s Research Institute, affiliated with UofL School or Medicine, and select locations across the country are recruiting volunteers to help understand the long-term effects of COVID-19 in children and young adults.

Volunteer for the RECOVER Study

Whether a child or young adult under age 25 has COVID-19 now, had it before or has never had it, they may be able to help scientists understand long COVID-19.

The study will examine how COVID-19 affects the body and why some children and young adults are sick many months after an initial COVID-19 infection. Feeling sick for a long time after a COVID-19 infection often is referred to as “long COVID-19.”

The study is part of nationwide research project called “Researching COVID to Enhance Recovery” — RECOVER for short. The work is paid for by the National Institutes of Health (NIH), a part of the federal government that supports medical research.

Researchers will observe children and adults ages 25 and younger to learn more about COVID-19 and how to treat it. Individuals who have or have not had a COVID-19 infection or long COVID-19 (also called PASC or post-acute sequelae of SARS-CoV-2) symptoms will provide information over a period of time to help identify risk factors for developing long COVID-19.

Who Is Eligible? 

Anyone age 25 or younger who:

  • Has COVID-19 now
  • Had COVID-19 in the past
  • Never had COVID-19
  • Is feeling long-term effects from COVID-19

Meet the Principal Investigator

Dr. Stevenson’s recently published research

“Ultimately, the study hopes to identify the most common symptoms experienced by children who had COVID, with the long-term goal of improving tests and treatments for those who experience long COVID.”

What to Expect During the RECOVER Study

 

Many people who decide to take part in the study will be asked to visit researchers one or two times a year for tests at the Novak Center for Children’s Health in downtown Louisville, Kentucky. Tests will range from questionnaires to collection of blood, urine and other samples. 

All study participants will follow the same study plan, though some children will be asked to do more tests. All children, young adults and caregivers will be asked to:

  • Answer questions about their life and health, or the life and health of their child
  • Give samples of blood and other fluids and tissue, such as saliva, urine and feces

Children and young adults also may be asked to:

  • Have height, weight, blood pressure, heart rate and other vital functions measured
  • Record any symptoms and measure activity level

The study team will tell the family and the child’s health care provider about any test result that could affect how the child’s health is managed. The study itself will not provide treatment.

The information gathered from the surveys and tests, as well as from study samples, will be used to better understand long COVID-19 and will be saved to help researchers in the future. Additional researchers may want to use the study data for related work. They will receive data with no identifying personal information, such as name or birth date, to protect participants’ privacy.

All study tests will be paid for by the NIH. People who are part of the study will be paid for their time to do surveys and tests.

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